Thursday, May 9, 2013

Repeat Circumcision: Lessons Learned From the Mother of a Botched Baby

By Josie Wallace © 2013


There he was. Purple, screaming, shaking. Fists so tight that his little knuckles were white. And the blood, it was everywhere. His tiny body was still strapped onto the board.

And no one cared.

Not the nurse or the doctor - no one down the hall came running to help him. His screams were everywhere, all over the building. And I didn't know what to do. I stroked the only place I could, which was his forehead. I told him that I loved him and that I was sorry, I was so sorry... and that he would be okay.

But I didn't know... would he be okay?

Nobody seemed to mind everything he was going through. It was no big deal, the screaming, the bleeding - none of it seemed to matter. It was normal around here. Another day circumcising babies for everyone else. But it did matter. HE MATTERED. Everything that had just been taken from him mattered. The pain he was in mattered. And I knew I had just made an awful choice that would forever change who he was supposed to be.

After eight hours of bleeding, my baby boy had emergency surgery. They had accidentally cut all the skin off the shaft of his penis. That day changed my entire life, and his, forever.

I remember being really angry at all the people who told me circumcision was 'best' for my baby. I couldn't understand how everything he just went through could possibly be for the better. How could having a body part ripped off of him, and then coming so very close to bleeding to death be better than remaining intact as he was made?

And then I got really angry with myself for believing everyone else around me, when in my heart I knew the truth. I believed all their lies. And I hated myself for it. I felt like I was being punished for not listening to my heart. The guilt was overwelming and took me over in huge waves. I was lost for a long time.

Time went on and he grew more and more. My son ended up having two more corrective surgeries at 18 months and 23 months. Both were extremely hard for all of us, but the last one was horrendous. He still remembers it to this day. I went back after the surgery to a inconsolable, screaming baby who I had never seen. Nothing I did helped him. A few weeks later the night terrors started. He would wake in the middle of the night screaming with his eyes still closed. I couldn't wake him or calm him. They were caused from the stress of the surgery. I knew this for certain.

At this point I was drowning in guilt, I couldn't breathe. Most nights I cried myself to sleep and I felt so alone. The only thing I knew to do was talk about it, so I did. I talked about it and got it out there. I started saving babies and my heart started healing. The more babies I saved in honor of my son, by sharing our story, the less guilt I had.

I soon realized that it wasn't my fault... I did what everyone told me, including the doctors, was best for my baby. And I truly wanted what was best for him - I loved him. Everyone wants what is best for their child. I know some people still think it is my fault - but it wasn't. I eventually realized that rarely is it a 'parent's fault.' We believe the doctors and all the lies, we think intact penises are dirty and disease filled. We are told that to be 'normal' is to be circumcised. It is so hard to stand alone sometimes when everyone is against you. I do blame myself for this - for not standing alone anyway - but I know now I am strong enough to be here solo and hold my ground when it comes to my children. I'm all they need.

So after years and years of re-living these experiences, my advice to new and expecting mothers is this: Listen to your mommy gut! Don't believe everything people tell you, and question everything. You have a right to know the truth, to understand fully all the facts, and your son does too. My baby lived the truth and faces the consequences of this every day. In his honor, please research circumcision.

Update: Since the birth of my first son, and our experiences with circumcision, I have had two more heathy boys! Both of them remain intact today as they were born. Our experiences with my first son taught me many lessons as a mother - it changed every aspect of our lives. Today I question and research everything when it comes to my children and I highly encourage you to do the same.

Graphic by Intact Houston


To read more from parents whose sons were circumcised before they had accurate or complete information, or to join a supportive group of parents who have been through similar circumstances, see resources at I Circumcised My Son: Healing From Regret.  

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Sunday, May 5, 2013

Circumcision: I Promise, Never Again

By Shannon Weissman © 2013

My heart aches every day for the mistake I made that I can never take back. I cry and hope that my son can forgive me for the uneducated decision that I had no right to make on his behalf. 



January 2011: My son was born perfect. My labor was unmedicated and fairly quick. I was proud of myself and my lil babe for doing so well. He was 8lb 3oz of gorgeous chubby baby! He nursed right away and was very happy. My husband, who is Jewish by birth but not practicing, assumed that our son would be circumcised. I never questioned it. I didn't know I should. I didn’t think there were risks. I was so ignorant. I hardly even thought about the procedure until that day. I had no idea what it entailed.

While I was pregnant, my husband approached me about having a brit milah. I told him I knew nothing about it and he would have to do all the work researching for a rabbi and temple, etc. But we ignorantly never researched the details of the surgery itself. What he did find out was there was no mohel where we live and if we wanted the procedure done by a mohel we would have to fly one out! Because that was a stretch for us and we had no family close enough to attend, my husband decided to say the Jewish prayer himself as the pediatrician performed the circumcision.

When the doctor came in to talk to us about our son's circumcision, all I could think about was how this was the safest and best option for him in the long run - believing all the common myths American parents typically hear. I asked the doctor how many circumcision surgeries he had performed and begged him to be careful because my baby only gets one penis and there was no going back. (Boy did I miss the message in that!)

Our physician joked that this was his first time performing circumcision, and then reassured me that he had performed hundreds before and he would do just fine. He almost tried to tell me this was an unnecessary procedure, but he failed to warn us of any risks or any dangers involved. We did not have to watch a video about circumcision, although we had been required to view the shaken baby syndrome video... Why don’t they give parents full disclosure on circumcision procedures as well?! At the time, I didn’t even consider that death was a risk at all. Dumb, I know -- death is a risk of any surgery. But I hadn’t even considered it. If I had, then my son would most certainly remain intact, because his life is much more precious than circumcision. I would not have risked his life for this. I know now that I am lucky he is alive.

We had permission for my husband to be present in order to say the Jewish prayer while they performed the circumcision, but there was no way I could have been in that room. Now I wish I had been... I'm sure I would've stopped it! I cannot imagine seeing my perfect baby held down and tortured.

When my son came back to the room, he would not nurse for hours. He just slept. I realize now that he was in shock. My poor, innocent, one-day-old baby was in shock. I asked if it was normal for him to not be nursing, and I was assured that this was typical post-circumcision. Hospital staff tried to calm my fears by telling me he did not cry during the circumcision and everything went 'perfect.' They used a Plastibell and told me it was safer. Plastibell circumcision leaves part of the plastic ring on the head of the penis during the post-operative healing phase. It falls off on its own around the same time as the umbilical cord. I asked about how to care for this and was told not to put anything on it! Period. No other instructions. I was surprised because I did remember a friend having a son not long before and she told me about using lots of Vaseline. But I asked again, and was again told the Plastibell required no extra care and to not put anything on it -- it would heal on its own. I should not wipe it with a wipe, but drip a little warm water on it from squeezing a wet paper towel. That's it. No further instructions, no warnings, nothing to look out for, no directions for how to care for it after the Plastibell fell off. And we were sent home...

Thinking back, I cannot even remember changing my son's diaper before he was circumcised. I try so hard to think about what his body looked like perfect and whole and unmutilated. But I can’t even remember. I didn’t even give him a chance.

The first week home was uneventful. But when the Plastibell ring started to fall off unevenly I got nervous. I called everyone I knew who had a son and asked if they were circumcised with a Plastibell and if this was normal. A friend of mine stopped by who had a son with this type of circumcision and said it looked normal. At our 2 week check up the doctor said it was okay and not to worry. We were again told we shouldn't be putting anything on it. When the ring came all the way off I was relieved. Everything seemed to be alright? But I've never taken care of a circumcised penis before! I noticed there was still enough foreskin to cover the head of his penis. So, once a day I would pull it back just a little to wipe it clean. I never pulled it back too much because I didn’t want to hurt my baby. Everything seemed fine.

At about 3 1/2 months I noticed that a small part of the remaining foreskin was reattaching to the head of my son's penis. When I asked the doctor about this at his 4 month visit, she said not to pull it apart because it would cause scarring and cause him pain in the future. So I was sure not to pull it apart! I then started to notice this remaining foreskin attaching even more. Every time I talked to my mother about my concerns, she would tell me I was 'obsessed with his penis' and she was sure it was fine. This of course made me feel worse. Was I 'obsessed?' I don’t know. How could I not notice it? I changed him 10 times or more a day! He did not seem 'fine.'

We saw a different doctor at our next visit and he told us to separate the remaining foreskin from the glans (head) of the penis by pulling it apart, but I was concerned about scarring as the other doctor had warned us about. So I did not. And then I started to do some research online... I learned that what he has are likely penile adhesions. Some sources told me to separate it at home and some said that he would need another surgery (repeat circumcision).

At about 8 months I took him to a naturopath because I wanted to try out a more natural health care provider. Even though it was going to cost me $200 out of pocket for our first visit, I was excited to talk to someone more on my page. When I called to make the appointment and spoke to the N.D. on the phone, she assured me that she could address every question I had, including his circumcision. After our pricey appointment, however, I was extremely disappointed. Not only were we rushed with hardly enough time to recall the questions I had, she also looked at his circumcision wound and said, "I think it looks okay, but I’m not a penis expert." Really? We never went back.

A few months later I made an appointment with our doctor for a referral to a urologist. I wanted to talk to someone who looked at penises all day. I needed an answer! Our doctor refused to give us a referral. She said if he wasn’t in pain, not to worry about it. She said to give him a warm bath and then gently separate the foreskin from the glans, and apply Vaseline. At this time my son was 10 months old. He would not sit still in any way whatsoever for me to try to separate it. And I was terrified I was going to make it worse.

I felt like a failure of a mother! How could I not protect him. How could I just let them do a surgery on my one day old PERFECT baby without doing any research?!

Today, I am so angry at myself that I cannot stand it. I make myself sick to my stomach wishing I could go back to that day and change things. I have permanently mutilated my perfect baby boy. Definitely have scarred him with my ignorance. I regret it every single day with my entire heart and soul.

When he was about one year old I finally reached out to the intactivist community and got more answers and more knowledge than any doctor had ever taken the time to tell me. I am still learning every day. We have decided to leave his adhesions alone and hope that they separate during puberty like a normal foreskin would. If he ever expresses that he is in pain we will readdress it and first look into steroid cream options and manual tugging to help separate the adhesions. Another surgery would be a very last resort.

I have also decided that when he’s old enough for the conversation I will explain to him why I allowed this to happen and hope that he forgives me. I will talk with him about foreskin restoration and offer to pay for products if he decides he wants to pursue that. I have also thrown myself into intactivism. I serve as Co-Director of Intact Hawaii and will never allow anyone I know to have a baby boy without the knowledge I have today. I cannot force anyone to change their views, but I do hope they are open minded enough to listen and research before it is too late. I will spread the truth to change the future for our children. Our sons deserve to have their genital autonomy protected, just as our daughters have today.


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 These cards are available to request and share here: http://www.savingsons.org/p/info-cards.html


Hear from more parents whose sons were circumcised, and find resources specific to those raising both circumcised and intact sons at: http://www.drmomma.org/2010/05/i-circumcised-my-son-healing-from.html


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Saturday, May 4, 2013

May the Foreskin Be With You! Star Wars - Intact Style!

By Erin Dutra
Director, Intact Rhode Island


I have to admit, I have never actually watched an entire Star Wars movie, but my husband is an avid Star Wars fan, so naturally our kids are too. Over the past few years of making Star Wars Halloween costumes and planning Star Wars birthday parties, I've grown familiar with the characters and become a little more into it than I ever would have expected. I find some of the characters cute - (have you seen an ewok? Adorable!) -  and I become a little excited when I see a Yoda shirt or R2-D2 lunchbox in the store.

My son was born on Star Wars Weekend (an event I only know because of my husband: "May the 4th be with you!" and "Revenge of the 5th"). So in honor of my son's birthday, I decided to create a fun, pro-intact meme that fit with the Star Wars theme to share on Facebook. My original idea was, "Your little Jedi needs his whole lightsaber" ...and then several other ideas started to surface. Soon, I was cracking myself up with witty slogans - I may not be a true Star Wars fan, but I'm clearly a true nerd!

Once I had a handful of graphics created, I could not choose just one for my son's birthday, so I declared the entire week leading up to May the 4th "Intact Rhode Island's Star Wars WEEK." It has been so much fun seeing the response these graphics (and the accompanying informative links) have received. Over the course of the past week they have reached tens of thousands of individuals on Facebook and Pinterest, and have been shared by hundreds. Clearly, there are a lot of Star Wars fans out there, and many of them support leaving babies intact!

I think it's awesome that so many people, who may not otherwise be interested in learning about the benefits of remaining intact and the detriments of circumcision, will be intrigued by fun Star Wars images popping up in their newsfeed and will discover some important information in the process.

















Learn more from Erin and her Star Wars Fun Family at Intact Rhode Island.

If you have an Intact Star Wars themed photo you'd like to share, send to SavingSons@gmail.com and we'll include it here as well. ツ

"May the FORESKIN be with you!"
~Ginger's little sweetie of Intact Wyoming 


Christina's cutie, of Intact Iowa, plays in the May 4th sun in his Rumpkinz May the foreskin be with you cloth custom!


Mandi of Intact Michigan writes,
"I tried snapping a picture while my son was awake, but this little guy is a mover and a shaker, so I had to wait until he passed out. May the foreskin be with you!"


Made By Momma tee sported by Jess at Intact Michigan today.
"May the Fourth be with you. And enjoy the Revenge of the Fifth!"


Further Intact Star Wars memes from Kristina of Intact Houston









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Tuesday, April 30, 2013

Birth of an Activist: Reflections from David Wilson of Stop Infant Circumcision

By David Wilson, founder of Stop Infant Circumcision Society and Genital Integrity Awareness Week


I remember as a child looking at this photo of myself as a baby and thinking that I had wet my diaper. And then my mom told me that it was not a wet diaper, but was blood from being circumcised. I had no idea what that meant or what 'circumcision' was until one day when I was about 11 years old. I overheard my mom talking about circumcision and when I asked what it was, she said that when I was born "the doctors thought my ding-a-ling was going to be too big" so they cut off a piece.

I ran to the upstairs bathroom and looked at myself and I could see the difference in the texture of skin, and I could see the scar, and said to myself, "They did cut me..." At the time, I thought they must have taken a section out of the middle and reattached it. I was traumatized for several years until I got into sex ed classes in school.

Circumcision just didn't make sense to me because my cousins in the Bahamas were not cut. I saw them peeing outside when I was visiting at age 6-7 years. I went home and tried to stuff myself inside like they could. And realized I couldn't. When mom told me several years later that I had been cut (shortened) it started to make sense, and began my work to speak out. Still, she told me that it was just something "they" did to boys - that it was better. But I always thought, if circumcision was supposed to be so good for boys, why weren't my cousins cut? They were perfectly fine - healthy as could be. It just didn't make any sense and it was a tough realization to come to.


In the 1970s I attended Vietnam War demonstrations, and that is when I got my first taste of demonstrating. Years later, I made my way to Washington D.C. on April 1st (April Fools Day) with a homemade magic-markered sign to stand on the steps of the Supreme Court and speak out about infant circumcision. I chose April 1st originally because it was my own way to use a humorous approach to raise awareness on a serious subject.

The second year when I returned again on April 1st, I spent time on the steps of the Supreme Court and then walked to the East steps of the U.S. Capitol. I saw a gentleman sitting there demonstrating and asked an officer if it was something I could do as well. He said I could and told me how to file permits with the Capitol Police - something I've done each year since.

A buddy and I would drive up from Florida through the night, spend all day demonstrating on April 1st, and turn around to drive home. In 1996 I acquired a computer and got online to find that I wasn't the only one with a passion for seeing an end to infant circumcision. Just a few years later Van Lewis found me and together we made the annual trip back to Washington D.C. April was named Child Abuse Prevention Month in 1983, and the federal FGM (Female Genital Mutilation) Law became effective on March 30, 1997, so it has made sense to keep Genital Integrity Awareness Week at this time each year.


One thing that still astonishes me after all these years is the lack of outrage that should exist over the 117+ baby boys who die as a result of circumcision each year in the United States. That number is low [due to lack of recording/logging by hospitals] but whenever this comes up in conversation, unknowing peoples' response is, "Well, it doesn't happen that often..." Yet when even a handful of babies die needlessly from other things, we jump to ban and file lawsuits. All the while death from needless genital cutting continues to be ignored. Aside from death, what about all the thousands more who lose a part of their glans? Who have chunks taken out of the shaft? Who have other botched outcomes? All men lose something when they are subjected to circumcision...

For the longest time after learning the truth I did not want to look at the pictures. I did not want to watch the videos. But as time went on, I realized people need to see this. And as a result, some of the signs used in our demonstrations have become more graphic. This year we had one sign showing the distinction between an intact and circumcised baby boy -- it is something that parents need to be aware of. The old saying, "the truth hurts" is applicable here... This is the truth, and it does hurt, and it cannot remain hidden any longer.



Video by James Loewen of Bonobo3D. View more of Loewen's work at his channel: http://www.youtube.com/user/Bonobo3D

More from David Wilson at StopInfantCircumcision.org

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Tuesday, March 26, 2013

20th Annual Genital Integrity Awareness Week!



Make plans now to attend the 20th Annual Genital Integrity Awareness Week in Washington D.C.!

March 26 - April 1, 2013

All day, each day, on the West Lawn of the U.S. Capitol

GIAW Sponsors:
http://www.drmomma.org/2013/03/genital-integrity-awareness-week-2013.html

GIAW Events:

Primary Event Page
https://www.facebook.com/events/403587049704377/

Virtual Event Page (for those who cannot be in DC)
https://www.facebook.com/events/168231406646392/

Intact Social Picnic on the Lawn
Thursday, March 28, 2013 
6:30pm - 8:30pm 
West Lawn of U.S. Capitol 

Intactivist Learning Circle 
Friday, March 29, 2013 
3:00pm - 5:00pm 
West Lawn of U.S. Capitol Critical 

Critical Integrity Bike Ride 
Friday, March 29, 2013 
5:30pm - 9:00pm 

Foreskin Friendly Bar Hop 
Friday, March 29, 2013 
8:00pm - 11:00pm 

Bloodstained Demonstration
Saturday, March 30, 2013
1:00pm
West Lawn of U.S. Capitol

Intactivist Group Photo
Saturday, March 30, 2013
1:45pm Before March Begins
West Lawn of U.S. Capitol 

** March from U.S. Capitol to The White House ** 
Saturday, March 30, 2013 
2:00pm 
West Lawn of U.S. Capitol 

Kids' Easter Egg Hunt 
Sunday, March 31, 2013 
3:00pm 
West Lawn of U.S. Capitol 



Last year Saving Our Sons spent over $3K to fund hundreds of materials for each day of GIAW. This year, the bill looks to be slightly more ($4K) with added activities and additional needs and we cannot do this alone. It is essential to have enough engaging items on hand for large groups of visitors and tourists to want to take home with them (and keep and share). Seed planting only goes so far if the message does not cultivate into action back home. Please help us make GIAW 2013 a future baby-saving success!


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Friday, March 15, 2013

Cutting Ham: Why Do You Do This?



A tale to think about...

A woman was cutting both ends off of a ham to cook for a large family dinner.

Her husband looked at her curiously and asked, "Why do you do this?"

The woman replied, "Because my mother always did it."

Her mother soon arrived for the family dinner and the woman's husband asked his mother in law, "Why did you always cut off the ends of the ham when you cooked?"

His mother in law replied, "I did it because my mother always did this growing up..."

The woman's husband decided he simply must get to the bottom of this. What possibly was the reason for cutting the ends off of the dinner ham? So much waste, he thought. He called his wife's grandmother for the answer. "Why did you always cut the ends off the ham when cooking for the family?" he asked.

And Grandmother replied, "My oven is just so small, so my pan is small and it simply won't all fit into my oven."


Remember: Some actions begin for a reason, and some are actions repeated due to tradition that has lost its reason. Think about what you believe, what you've been taught, and where it comes from. Question. Research. You may just be surprised when you get to the bottom of it all.


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Monday, March 11, 2013

When Carding Hurts

By Xan Mej


Tonight I ordered intact information cards (below) for the first time.

It hurt.

Hurt to be reminded. Seeing the posts at Saving Our Sons hurts. Looking at the page hurts. It hurts because I have an 11 month old son who is near perfect. Near perfect because I sent him away to be cut. I sent him with the nurse because I thought it was my duty as a good Christian. I thought it was what God wanted... It hurts to be reminded of the unnecessary pain I caused him, the long term damage I allowed to be done to my own newborn baby.

But now I will go on and do my best to spread the knowledge that circumcision is not only unnecessary, but brutal.

My heart still burns and bleeds and I am still angry. Angry at my parents for being so ill informed. Angry at my church for supporting such things. But most of all angry at myself for not protecting my child. Me, his own MOTHER! His first line of defense! I have been so angry at myself for not questioning the church, for not doing my own Bible reading, for not listening to my heart telling me, 'This doesn't seem right...'

I was the one who sent him with the nurse less than 24 hrs after his beautiful and magical entrance into this world. He was whole and complete and perfect and innocent and trusting.

If only I was the one who suffered the consequences of my ignorance, and not my son!

This is what torture is: to wake up and realize you failed miserably, and then see your loved one suffer for it.

So today I go on and spread the word, in hopes that I will save another baby boy, and save his mother from the gnashing and burning that is in my heart, that I must forever endure.

Please, research circumcision.





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